We recently saw an interesting article from Dr. Hyde, the administrator of SAMHSA (Substance Abuse and Mental Health Services Administration).  She talks about some of the various different terms that people use for talking about mental health issues and chemical dependency:

Is a person who uses mental health services a patient? a consumer? A survivor?  Is recovery something you can define?  Is it a process?  Or should we be talking about wellness instead?

That article is found here, and the accompanying Q & A on language is found here.

We’d like to hear your thoughts on language and terms.  How important is it to you?  Is there a term you really prefer?  One that you can’t stand?  This is an on-going process, and we want to learn more about what people in Minnesota are thinking and feeling around these issues.  What we’ve heard so far is that the language we use around mental health has a big impact on if people feel respected and empowered.

We’re planning on using your feedback to help write an article that we’ll publish in our newsletter.  If you would not like your response to be used, or if you prefer to stay anonymous, just let us know, and we’ll honor those requests.  Please send any feedback to Ben, who will be compiling your answers.  We’ve already heard from some of our volunteers, and we look forward to getting responses from around the state.

CVS CarePlus conducted many of the blood draws required when a person is taking clozapine.  On June 1, 2010 the company ended this service and those individuals using CVS CarePlus must find an alternative for the required blood draw.

There are several options available that can result in connecting with a provider that can conduct the necessary blood draws:

• Speak with your psychiatrist or prescriber and make sure that they are aware that the blood draw is no longer available through CVS CarePlus.  Your prescriber should be able to direct you to an alternative provider.
• Contact your primary care clinic and set up appointments for the necessary blood draws.
• An appointment could be made with an independent lab in your area.
• Contact a home care agency that has the capacity to do in-home blood draws.
• Contact a pharmacy that has the capacity to do the blood draws.

Without the blood draws, people will not be able to obtain refills on clozapine, so the blood draws are critical.  If a person is not able to find an alternative provider for the blood draws, the advocacy program at the Mental Health Association of MN would assist the person in finding a workable solution.

Research suggests that peer support for persons with serious mental illnesses can improve psychological outcomes, such as empowerment, and can also improve clinical outcomes, such as reduced hospitalization. As of last year, Minnesota is now 1 of 26 states that cover peer support services. With a focus on recovery, the Certified Peer Specialist (CPS) is a compensated and trained member of a mental health services team. According to the Minnesota Department of Human Services website, the role of a certified peer specialist is to:

• Inspire hope that recovery from mental illness is not only possible, but probable
• Provide opportunities for people using mental health services to practice self-efficacy through activities that emphasize the acquisition, development and enhancement of skills needed to move forward in mental health recovery.
• Promote empowerment and self-determination
• Build relationships based on mutuality and shared-perspective
• Deepen the treatment teams’ understanding of the experience of being a mental health consumer.

CPS Training is provided through the the Minnesota Department of Human Services for individuals that work within an Assertive Community Treatment, Intensive Residential Treatment, Crisis Response and/or Adult Mental Health Rehabilitative program.

The Facing Us Clubhouse, a program of the Depression and Bipolar Support Alliance (DBSA), is a free online wellness tool for individuals living with mood disorders. The website offers a variety of tools and resources to help support and maintain a person’s health and well-being. These include:

• Personal online journal where you can write down your daily reflections, do some creative writing or gratitude practice, or other forms of expression.
• A step-by-step individualized wellness plan that helps you take control of your health and well-being.
• Personal wellness book where you can collect and write down tips and advice that work for you, read tips from others, and if you like, share them with family and friends.
• Media room that includes audio and video material to uplift your spirit.
• Creativity center that has online workshops and podcasts to help you be inspired and find your creative outlet.
• DBSA Wellness tracker can help you chart your daily life by spotting trends related to your mood, symptoms, life style and physical health.
• You can even send an e-postcard to somebody you care about!

Incorporating wellness into your life is just a click away!

The 2010 Legislative session was an extremely active and difficult session.  While the primary goal was to pass a bonding bill for long-term projects, spending on health and human services came into sharp debate.  Looking back at everything that happened, what will be the impact on mental health services?

We see four areas of major importance.  GAMC was the big concern early and late in the session, and we expect more news to come soon.  For more detailed history on what happened, you can read our previous entries here.  Right now, letters are going out informing people that GAMC is changing and that they must select a hospital home for clinic care.  Otherwise, they will be restricted to emergency only treatment.  What we don’t know is how the proposed patient limits will affect this process, or how many previously eligible individuals will complete their paperwork.  We suspect that this will be a major barrier.  What we do know is that this is bad news for people living in outstate Minnesota.  The four hospitals that agreed to this plan are all in the Metro area.  People can still go to the ER, but only for emergency treatment.  We are working to find other resources for people who need assistance with obtaining medication or other non-emergency care, but the outlook is not great.

Guardianship law was one of the few “wins” we had this session.  You can read our summary here.  This change introduces a basic level of accountability for guardians and protects the rights of individuals to make long-term choices about their health care.  We believe that it is an important piece of working towards models of care that better involve and respect the person’s wishes.  In addition, it showed that we can still make important policy changes, as long as they do not require funding.

MA expansion was brought up several times in the session, and has an uncertain future, even though it is strongly favored by providers.  We view it as the best long-term solution to the GAMC issue and it is required to happen in 2014.  At the end of session, the final compromise budget did not include early expansion of MA, but authorizes the Governor to trigger entry at a later time.  Gov. Pawlenty has staked out a public position against federal health care reform and is unlikely to do so.  However, the next Governor may not be opposed or simply not have any choice to refuse so much federal money.  You can read about the candidates’ stances on MA expansion here.

Funding for basic mental health services came into jeopardy this session.  When the state invested an additional $34 M in spending in the mental health system in 2007, it was seen as a major move forward.  Yet, we are now seeing major cuts that will quickly dwarf that investment.  It’s hard to interpret this as anything but a step backwards.  Some of these cuts are set to expire in 2011, but we know that it will take a lot of political will in order to resist sustaining those cuts as the budget crisis deepens.  State Operated Services will be redesigned and face cuts, despite delaying the inevitable by refusing to follow legislative and community input.  MHAM is pleased to be included with other advocates and stakeholders in helping outline what SOS truly needs to deliver.  While the cuts will be significant here, we are hopeful that an intelligent redesign process will limit the impact on consumers.

As these conversations continue through the election season and into the next session, we think that the State needs to face facts about budget cuts.  We believe that many of these shifts and cuts do not really last.  Property taxes are up sharply as counties try to recover from reduced aid from the state, and cuts to low-income health care typically raise the rates for those with insurance.  Supportive housing, PCA services, drop-in centers, and other long term/lower intensity services have all been on the chopping block.  But hospitalization, crisis response, and police involvement are far more expensive.  When these services are cut, the trade-offs have both human and financial costs, and we will work hard to push back against the band-aid approach to budgeting in the state.

Working towards the next legislative session, a few things are going to be different.

• There will be many new faces.  We will have a new Governor, but we will also have many new legislators as well.  Many retirements were announced as the end of session, and many elections will be hotly contested.  We see this as an opportunity to educate and inform new lawmakers about why mental health services are important and can reduce long-term costs.
• The deficit will be larger.  The funding “shifts” for K-12 education will come due, one-time funding has been used up, and tax revenues are still lower than in previous years.  The new Governor and the Legislature will have difficult decisions to make about how to balance the budget.
• Lastly, we hope that more of you will join us in calling, writing, and staying involved.  We know that contact from constituents made a big difference in outcomes this session.  We will continue our outreach across the state to LAC groups and other communities, and we would love to hear from you about getting involved.

May is Mental Health Month and we wanted to highlight some important initiatives regarding wellness and recovery. The Substance Abuse & Mental Health Services Administration (SAMHSA) earlier this year started the SAMHSA 10×10 Wellness Campaign. The campaign’s goal is to address all aspects of a person’s health and wellbeing in hopes of increasing life expectancy for people with serious mental illness by 10 years over the next 10 years.

The rates of diseases such as diabetes, cardiovascular disease, and respiratory disease and the early mortality rate from these types of diseases are often significantly higher for persons with serious mental illness. By addressing modifiable risk factors like smoking, obesity and inadequate medical care, can help reduce the progression or the risk of developing these diseases. The campaign provides a variety of resources, online issues of “Wellness Wisdom” and frequent teleconferences for providers, family members, and consumers.

To date, more than 2000 organizations and individuals have shown their support in promoting wellness to reduce morbidity and mortality for persons with SMI. The Minnesota Department of Human Services, along with other members of the community have developed a statewide initiative, Minnesota 10×10, which also promotes the importance of taking care of your physical health for living a healthier, longer life.

MHAM has joined this quest for wellness and we hope you will pledge your support for wellness too!

With the regular session fast approaching its end, the Legislature and the Governor have still not come to a budget agreement.  Gov. Pawlenty vetoed the Health and Human Services bill that we recently wrote about.  However, most observers see signs of potential compromise, that the veto letter indicated a willingness to compromise.  What we are concerned with is that the Governor is looking for other funding sources to pay for Minnesota’s share of MA expansion.

• The hospital and insurance surcharges are a fundamentally fair way of collecting this money.  Most of the organizations affected will also benefit greatly from expanded MA.  This is a fair trade in which everyone benefits.
• Previous funding sources included large cuts to the Adult Mental Health Grants.  We oppose these cuts strongly, as it is not wise to provide health insurance at the same time that we eliminate necessary mental health services.

We need a budget signed into law, and we know that this will involve compromise.  But we would strongly oppose a return to raiding mental health services to solve the budget crisis.

Once again, the future of mental health services are back in the hands of Gov. Tim Pawlenty. The House and Senate Conference Committee finally finished their negotiation of the final bill that would go to the Governor.  You can see the full details here.  These discussions have been long and tense, and many of the most important programs for our community were up for cuts.

The final bill is better than the Governor’s original proposal, and it is much better than the House proposal too.  But it still reflects the political and economic environment we’re in, and it will be a challenge to deal with in the coming year.  Please contact the Governor’s office and let him know what you think.  The compromise bill proposes:

• Restored funding for the Adult Mental Health grants supports community programs such as CSPs, drop in centers, and case management.  These grants were cut earlier in the session to pay for the GAMC compromise bill.
• Restored funding for ACT teams in rural areas.
• Cuts to housing with support for adults with serious mental illnesses.  However, these cuts are for 2010 and are not projected to continue at this point. All the major proposals have cut this amount.

We are particularly concerned for out-state Minnesotans at this time.  The Governor has taken it upon himself to modify the conditions of the GAMC deal struck with legislators earlier in the session.  When no hospitals would agree to participate, he  managed to convince 4 metro hospitals to accept a limited number GAMC patients.  There are two serious problems with this.  Patient limits were not part of the legislated solution, and may cut individuals off from needed care.  Secondly, four metro hospitals do not replace a state-wide safety net.  This is an unacceptable plan to people who do not live near the Twin Cities.

We would like to thank the members of the conference committee for hearing the needs of Minnesotans with mental illnesses.  We urge the Governor to do the same,

Since the MN Supreme Court decision reversing unallotment came down, we have known that budget negotiations would have to go into the final hours of the session.  But we are also facing new uncertainty about Federal funds that both sides were counting on to solve this biennium’s shortfall.

This means that the budget gap is now at about $3 B.  Obviously, this is a significant amount concentrated into the final year of the biennium.

The  plan proposed by the MN House and Senate majority addressed this new amount.  It would ratify certain parts of the unallotments, such as delays and shifts in K-12 Education funding and in local government aid.  What is significant about this plan is that it spreads the cuts more evenly that other proposals we have seen this yea. In addition, it plans on eventual restoration of the most important mental health related county grants and it raises new revenues through income taxes.  If the $400 M in Federal money does arrive, some money is put back into health and human services.

Passed narrowly last night, it met an almost instant veto from Governor Pawlenty.  There appears to be very little forward movement or compromise appearing.  Pawlenty has asked again for the Legislature to ratify his solution, but it was voted down by large margins in the House.

As we’ve said before, we hope that you will ask your legislators about what they have done to make a workable compromise possible.  There’s too much at stake to continue our present course of disappearing services and lost independence.

For over 60 years, Mental Health America – who began this tradition in 1949 – and other national and state mental health organizations have been celebrating “Mental Health Month.” In recognition of Mental Health Month, MHAM will be informing you about several important mental health initiatives involving both national and state led efforts. The central focus of these initiatives involves wellness and recovery for persons with mental illnesses. The importance of self-care and personal wellness not only can improve our mental health, but can also improve our overall health and well-being. So revisit our blog throughout this month and learn more about how these initiatives will help promote wellness and recovery for persons with mental illnesses.

Also, please check out our calendar of events that are occurring around the state for the month of May. If your organization is having an event and you would like it to appear on our calendar, please email details to Nancy at [email protected].